Clear, respectful and truly patient-centric clinical trials

We believe an educated patient is an empowered partner.

This place is dedicated to explaining the new standard in modern research:
one that respects your life, voice, and choice.

What Is Patient Centricity in Clinical Research and Why Should You Care?

Patient-centric research means putting you at the heart of developing new medicines. It’s a partnership where your voice shapes the studies, leading to better treatments designed for your real life.

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Transparency and Respect in Clinical Trials. Because You Deserve Both!

When it comes to clinical research, trust starts with honesty. Patients deserve more than a signature on a consent form. They deserve clear information, realistic expectations, and the confidence that their voice will be heard throughout the process.

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Reducing the Burden of Clinical Trials so Research Works for Your Life

Clinical trials shouldn’t feel like a second job. They shouldn’t drain your time, energy, or finances. And they definitely shouldn’t make it harder to live your life while trying to improve your health.

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Diversity and Inclusion: Why Representation Matters in Clinical Research

Different communities experience health and treatment differently and that should be reflected in the research. Modern trials are working to reach underrepresented groups, while diverse participation leads to more effective, equitable care for everyone.

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What Happens After the Trial? Follow-Up, Feedback, and Staying Informed

Patients deserve clear follow-up, accessible feedback on study outcomes, and the option to stay informed about what comes next, even if they choose not to continue. Modern research knows post-trial communication matters for patient trust, engagement, and care.

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What Questions to Ask Before Joining a Clinical Trial

You deserve to know exactly what you’re saying yes to. Explore a practical list of questions every patient should consider before saying yes to a research study. It’s not about making you a clinical expert. It’s about helping you feel confident, informed, and respected every step of the way.

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Phase I Clinical Trials: Is It Safe?

If you’re thinking about joining a Phase I trial, or you just want to understand how these studies work, here’s what you need to know: You won’t be a test subject. You’ll be a pioneer and your safety comes first.

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Phase II Trials: Is This New Treatment Effective?

What do Phase II trials involve? What can you expect as a participant, and how does your involvement help? Let's dive in and move promising science one step closer to real-world use.

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You're not a subject. You're our partner.

The shift in research: More than just "Friendly"

“Patient-friendly” is a good start, but it’s the bare minimum.
True “patient-centricity” redesigns research around the patient’s life. Here’s what to look for.

Patient-Friendly (The old way)

Comfortable waiting rooms
Reimbursement for travel costs
Friendly clinic staff
General information brochures

Focus: Making the clinic visit more convenient

Patient-Centric (The new standard)

Patients help design the study protocol
Options for at-home/remote visits (Decentralized trials)
Study goals that matter to patients (e.g., quality of life)
Clear summaries of study results are shared with you

Focus: Respecting your expertise and integrating the trial into your lfie

Our patient-centric principles

This is what you can expect from us. It’s our promise to you.

Transparency & Respect

Plain language materials, realistic expectations, and shared decision-making. You control if/when to engage or withdraw.

Feedback & Results

We share general study results and invite feedback to improve future studies, as well as options to receive lay summaries.

Burden Reduction

Decentralized options (home, health, eConsent, tele-visits), reasonable schedules, travel support, and childcare stipends.

Local & Remote Options

Site selection considers proximity. We combine in-person and at-home assessments when possible.

Inclusion & Access

Multilingual materials, accessibility by design, and community advisory boards that inform protocol design and recruitment.

Privacy & Data Protection

Your data is processed lawfully, with your explicit consent,
and safeguarded per GDPR//ISO 27001 standards.

From our blog: Rare Disease Spotlights

Learn about specific conditions, current research, and insights from patient communities.

Participants' voices

Anonymized feedback from people who have taken part in studies with us

Clear, respectful and truly patient-centric clinical trials

We believe an educated patient is an empowered partner.

What Is Patient Centricity in Clinical Research and Why Should You Care?

Transparency and Respect in Clinical Trials. Because You Deserve Both!

Reducing the Burden of Clinical Trials so Research Works for Your Life

Diversity and Inclusion: Why Representation Matters in Clinical Research

What Happens After the Trial? Follow-Up, Feedback, and Staying Informed